Talking Blood Cancer

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis speaks with Morgan Farley, an exercise physiologist whose personal journey and professional expertise have shaped her unique approach to patient care for people living with blood cancer. Morgan shares how her background as a high-level athlete and her experiences supporting her grandmother through lymphoma led her to specialise in exercise physiology for cancer patients. She describes the challenges her grandmother faced after being diagnosed, including recommendations to reduce physical activity during treatment, and how together they developed a simple, home-based exercise program that helped her grandmother maintain strength and improve well-being. Exploring the growing body of research showing that targeted exercise not only manages side effects such as fatigue but may also strengthen the immune system and improve treatment outcomes for people with blood cancer. Morgan Farley explains how even short bouts of exercise can make a positive difference, and how tailor-made programs can fit each individual’s circumstances and abilities. The importance of addressing both the physical and emotional effects of a cancer diagnosis, with insights on how finding purpose and community support can help people adapt and thrive during and after treatment. Concluding with practical advice, including the value of consulting with an exercise physiologist, starting with small steps, and not neglecting muscle strength in one’s exercise routine. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Nicole McKenna about her experience following a diagnosis of acute myeloid leukaemia (AML) in 2018. Nicole discusses the lead-up to her diagnosis, recalling how subtle blood changes were initially attributed to perimenopause before her condition was fully understood. She highlights the importance of trusting her medical team and avoiding potentially confusing or distressing online searches, sharing her strategy of focusing on information from her doctors. Nicole describes the emotional impact of her diagnosis, especially the challenge of communicating the news to her family, particularly her two daughters who were teenagers at the time. They explore how Nicole and her family adjusted to life after diagnosis. Nicole talks about the essential role her wider community, friends, and even her pets played in supporting her. Outlining Nicole’s time in hospital during intensive treatment and stem cell transplant, some of the physical side effects she faced, including hair loss and a tough recovery period, and the ways she found comfort in small, familiar routines. Nicole and Kate discuss the importance of specialist psychosocial support following treatment, and how building connections with others who have lived through similar diagnoses can make a meaningful difference to emotional recovery. Nicole now uses her experience to support others and advocates for providing a patient’s perspective to health service improvement, reminding listeners of the value of shared experiences and community. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Keira Cowan to discuss her lived experience with severe aplastic anaemia. Diagnosed at age 15, just before her 16th birthday, Keira Cowan shares her journey from the first signs of illness through her diagnosis and the subsequent impact on her education, friendships, and mental wellbeing. Describing how her symptoms were first noticed by her family and friends, leading to a sequence of medical appointments and hospital admission. She recalls the shock and uncertainty of hearing her diagnosis and the anxiety that followed during her initial hospitalisation and treatment. They explore the challenges of managing a blood disorder as a young person. Discussing the realities of missing school, maintaining friendships during long periods at home, and the role of a reliable support system. Keira speaks candidly about feeling isolated at times and the strategies, such as getting a pet and maintaining regular communication with close friends, that helped her cope emotionally. Highlighting the importance of supportive healthcare services, such as hospital schools and flexible academic arrangements. Keira Cowan discusses the transition from paediatric to adult care, her ongoing health monitoring, and her determination to pursue a career in healthcare inspired by her own journey. She offers honest advice to others facing a diagnosis, emphasising the value of leaning on support networks and acknowledging that it is okay not to be okay. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff welcomes Eleanor Quinn, a supportive care case manager and dietitian with the Leukaemia Foundation. They explored nutrition and wellbeing for those affected by blood cancer, offering insight from both a healthcare professional and support perspective. Eleanor discusses the unique pressures that patients, carers, and families can feel when it comes to eating well during a blood cancer diagnosis and treatment. She addresses common myths and misunderstandings about food, emphasising that there is no one food or diet that can cure or prevent relapse of blood cancer. They discuss how overwhelming “food noise” from social media and well-meaning advice can be, and the importance of seeking reliable guidance from qualified dietitians when needed. Sharing practical advice for managing nutrition during treatment. They also touched on the financial challenges many face with the rising cost of food, providing tips for nutritious eating on a budget and highlighting the role of community support. Eleanor offers considerations around medical nutrition support, such as nasogastric tubes, aiming to reduce stigma and fear by explaining their purpose and temporary nature. The importance of open communication with healthcare teams, and encourages both patients and carers to advocate for their needs and preferences, whether related to food, symptoms, or overall wellbeing. Links & Resources: Nutrition and blood cancer made simple Nutrition and blood cancer For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Lorri Veca, who shares her personal experience of being diagnosed with multiple myeloma at the age of 65. Lorri discusses the unexpected nature of her diagnosis, which was discovered during a routine blood donation when she had no obvious symptoms. She talks about the medical investigations that followed, and how quickly her life was changed by the need to start immediate treatment. Lorri gives an honest account of the many challenges she faced following her diagnosis. The impact of cancer-related fatigue, the need to stop working in a role she loved at the Australian Red Cross, and the process of adjusting to a new normal. Lorri describes her experience navigating mental health challenges, the importance of acceptance, and finding practical strategies to cope, such as gentle exercise and using support networks. Highlighting the importance of open communication with healthcare professionals, support organisations like the Leukemia Foundation, and loved ones. She also talks about the value of setting boundaries, preparing for unexpected changes, and focusing on the aspects of life that she can control. Lorri’s story provides advice and encouragement to others living with blood cancer. Showing that it is normal to experience grief and loss and highlights the role of social connections and mental health support. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Jacinta Smith about her journey facing acute myeloid leukaemia. Jacinta shares her experience from the initial diagnosis through the many physical and emotional challenges that followed, providing an honest account of what it means to adjust to life with a blood cancer diagnosis. Talking about Jacinta’s busy life before diagnosis, including her role as a mother of three and her successful banking career. She describes the early signs of illness, her hospital admission, and the shock of learning about her condition. Jacinta openly discusses the experience of telling her children about her diagnosis and how her family coped during times of uncertainty. They explore the realities of treatment, including the difficulties of chemotherapy, the need for a bone marrow transplant, and the impact of serious complications like infection and intensive care stays. Jacinta details the physical rehabilitation required after a long hospitalisation and the gradual process of regaining strength and independence. She provides insight into the emotional and psychological effects of her ordeal, including the value of psychological support and the importance of asking questions and staying informed throughout treatment. Jacinta also highlights her current involvement in health consumer work, supporting other patients and contributing to healthcare improvement. She underlines the significance of staying positive, surrounding oneself with supportive people, and being proactive with both physical health and communication with medical teams. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Carlos Soto to discuss his experience as a bone marrow transplant survivor after being diagnosed with aplastic anemia at the age of 20. Carlos details the challenges he faced following his diagnosis in Mexico, the difficulties in finding a diagnosis, the struggle to access treatment, and the reality of funding his own life-saving procedure due to limited healthcare coverage for unrelated bone marrow transplants. Carlos describes the emotional and physical challenges of living with a serious blood disorder, from experiencing extreme fatigue to coping with periods of isolation and depression. Explaining how community support, family, and fundraising were essential in securing the funds needed for a bone marrow transplant from a donor in Germany, and highlights the complicated logistics and emotional ups and downs that came with the process. Talking about his long recovery following a transplant, including ongoing health management, coping with side effects like blood clots, and the importance of continued medical follow-up and self-care. Carlos shares how techniques like meditation and mindfulness helped him navigate difficult periods, and he reflects on the role of gratitude throughout his journey. They discuss the impact of family, particularly the vital support from his mother, and how Carlos took personal responsibility in managing his health after transplant. Concluding with Carlos encouraging others to consider registering as bone marrow donors, noting how simple acts can give someone a second chance at life. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Sam and his partner, Sally, to explore the reality of receiving and living with a blood cancer diagnosis as a young family in Australia. Sam shares the circumstances leading to his diagnosis of acute lymphoblastic leukaemia, describing the early symptoms, initial misdiagnosis, and the shock that followed. Sally recalls the immense emotional impact this news had on their lives, the challenges of facing such life-changing information while parenting a young child. Giving insights into the grief, denial, and anger experienced by both patient and caregiver as they navigate the uncertainty that comes with a serious illness. Delving into the practicalities of seeking help and emotional support. Sam and Sally discuss the importance of honest communication, setting boundaries, and reaching out to external communities, such as support circles and online groups, when immediate friends and family may not fully understand the situation. Both emphasise the value of being able to express difficult emotions openly, and how these shared experiences with others can help reduce feelings of isolation. They also talk candidly about the strain a cancer diagnosis places on relationships, and the importance of self-care for carers as well as patients. Touching on the added complexity of making treatment decisions and the necessity for individuals to trust their own choices in the face of difficult statistics and medical advice. Offering perspective and support for patients, families, and carers navigating the emotional and practical realities of blood cancer. This serves to remind listeners that while the journey is unique for everyone, no one has to walk it alone. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of Talking Blood Cancer, host Maryanne Skarparis sits down with Garry Kafoa, a proud Minjungbal man from the Bundjalung nation, to reflect on his experience with acute myeloid leukaemia and his journey of healing and resilience. Garry shares how his diagnosis at age 44 dramatically changed the course of his life as a professional fisherman. He discusses his early symptoms, the delay in seeking medical attention, and the importance of creating safe spaces for First Nations men to talk about health concerns. He describes the emotional impact of receiving a confronting prognosis and how hope, the support of family, and his cultural beliefs guided him through treatment, including a life-saving stem cell transplant from his brother. They moved to Garry’s life after treatment, touching on challenges such as depression and finding new purpose. He credits music and connection with community as vital to his recovery, leading him to roles in community service and cultural training. He highlights the importance of holistic healing, connection to country, and tradition in supporting wellness. Providing insights into the unique experiences of First Nations people facing blood cancer and underlines the value of supportive environments, storytelling, and peer connection throughout treatment and beyond. Garry also shares a song inspired by his journey, capturing the emotional landscape of diagnosis, treatment, and hope. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of Talking Blood Cancer, host Kate Arkadieff welcomes Trudy Marr to share her experience as a mother caring for her young son, Bobby, who was diagnosed with B-cell acute lymphoblastic leukaemia at just three and a half years old. Providing a first-hand look at the journey from early symptoms and the process of seeking a diagnosis, through to navigating hospital systems, and the daily reality of being a parent-carer in a regional community. Trudy Marr shares her insights into recognising when something isn’t right with your child and advocates for the importance of trusting parental instincts, especially when navigating various medical opinions. She describes the shock and rapid changes that come with a childhood cancer diagnosis, and the emotional and logistical challenges that families face, especially those who must travel long distances for treatment. Covering the ongoing impact of cancer beyond the completion of active treatment. Trudy Marr explains the concept of “survivorship,” highlighting how life changes for the child and their family after treatment ends. She details the lasting effects of cancer treatment, including physical, cognitive, and social challenges, and shares how important it is for parents and carers to remain advocates for their children as they continue to grow. They also explored the unique difficulties faced by regional families, including travel demands and limited access to support services close to home. Trudy Marr discusses her current work in advocacy, aiming to improve long-term survivorship care and support for children and families affected by blood cancer. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Denise Andres to talk about her lived experience supporting her husband, Jacob, through his diagnosis and five-year journey with multiple myeloma. Denise shares openly about the shock of diagnosis, the rapid changes it brought to their daily lives, and the shift from being a partner to becoming a carer. Exploring the challenges Denise and Jacob faced, including managing ongoing treatment, coping with the effects of chemotherapy, and navigating the emotional strain that comes with a terminal diagnosis. Denise describes the difficulty of balancing her own health concerns with Jacob’s needs and the importance of a strong support system during such a difficult time. Denise candidly discusses the reality of caring for someone living with blood cancer, touching on topics such as the impact on intimacy, the loss and grief that occurs before and after bereavement, and having hard conversations about end-of-life planning. Providing practical advice for others in similar situations, such as writing down important wishes and being open, where possible, about emotions. Following Jacob’s death, Denise reflects on her journey of grief and the process of finding a new sense of normalcy. She shares how she found healing through saying yes to opportunities and eventually moved into a caring profession herself, wanting to support others going through similar experiences. This aims to provide comfort and reassurance to those living with blood cancer as patients or carers, and that support is available through organisations like the Leukaemia Foundation. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by guest Graham Lewis to discuss his lived experience with blood cancer, specifically mantle cell lymphoma. Based in Adelaide, Graham Lewis shares his journey, beginning with his initial diagnosis and the circumstances that led him to seek medical advice. He recounts undergoing both autologous and allogeneic stem cell transplants. Along with the coping strategies he and his family adopted during challenging phases of treatment. Exploring the emotional impact of a blood cancer diagnosis and its ripple effect on family dynamics. Graham Lewis explains how his pragmatic approach to treatment initially helped him, but also candidly describes how “cocooning” affected those closest to him. The importance of open communication and maintaining connections within his community, offering insights on how these support networks contributed to his psychosocial wellbeing. Graham discusses living with chronic graft-versus-host disease (GVHD) following transplant. Describing the setbacks that came with severe physical disability and how the COVID-19 pandemic compounded feelings of isolation. They emphasise the benefits of advocacy work and sharing experiences to improve healthcare outcomes for others facing similar challenges. Providing practical advice for patients and carers, and the importance of assembling your own support team, maintaining curiosity, and investing in one’s own health and relationships. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Nicole Sanzo, who shares her personal journey with blood cancer and following diagnoses. Nicole was diagnosed with acute lymphoblastic leukaemia (ALL) at just 4 years old. She discusses the challenges of receiving a diagnosis in regional Australia, and the realities of treatment as a young child. As Nicole talks through her experience, she reflects on how treatment affected her childhood, including her learning, social connections, and memory formation. Describing the support she received at school, with having teachers and aides who helped her negotiate learning difficulties. Along with her ongoing challenges such as fatigue and adjusting to life after treatment, which continued to affect Nicole beyond her initial diagnosis and recovery. Nicole’s story continues with her later experiences of being diagnosed with two additional cancers as a young adult. First, a rare salivary gland cancer at age 18, and then breast cancer at 25. She details the emotional and physical toll of facing multiple cancer diagnoses, the impact on her family, her coping strategies, and the importance of seeking and accepting support. She openly discusses the difficulty of returning to a “normal” life, the experience of isolation, and the continued effects on her health, work, and outlook. Throughout the episode, Nicole emphasises resilience, the value of psychosocial support, and the importance of peer and family connections for people navigating blood cancer and its aftermath. Highlighting real and practical considerations for patients and carers. Ranging from educational challenges, accessing healthcare in rural areas, and the need to advocate for one’s health, through to everyday adjustments for living well after cancer. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network. Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

*This episode includes discussion of suicide and may be distressing for some listeners. Please take care while listening and consider seeking support if needed. In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Barry Du Bois, well-known TV presenter, builder, and ambassador for the Leukaemia Foundation, to discuss his lived experience with blood cancer. Barry speaks openly about his multiple diagnosis, including his first cancer diagnosis in 2011 and his later experience with multiple myeloma, providing insight into both the patient and carer perspectives. Barry shares the challenges he faced starting from his mother’s cancer journey in a country town, the trauma of losing a pregnancy with his wife Leonie, and then caring for Leonie during her own cancer diagnosis. He highlights the emotional toll of supporting loved ones through cancer, describing what he calls “borrowed trauma,” and reflects on the feelings of grief, isolation, and depression that followed. Sharing the importance of human connection and communication in helping him rebuild resilience during these difficult times. They talked about the significance of honest and empathetic conversation. Barry explains the different types of conversations people need during cancer, whether it’s solution-based, social, or empathy-focused, and encourages listeners to ask questions rather than offer solutions. Barry illustrates how small acts of empathy, such as a supportive phone call or a simple presence, were key in helping him take “micro steps” toward regaining his wellbeing. People will benefit from Barry’s honesty about vulnerability, the realities of living with an incurable blood disease, and the gentle encouragement to seek connection and small moments of joy while managing the ups and downs of a cancer diagnosis. From Barry: Breath work has been a quiet but powerful part of my life for many years. When I was told I had just three months to live due to blood cancer — a diagnosis I now live with — I needed simple ways to steady myself when everything felt uncertain. Breath work became one of those anchors. Slow, intentional breathing supports oxygen delivery to the blood, encourages circulation, and helps calm the nervous system. That state of calm can support immune health, recovery, and the body’s ability to cope with treatment and fatigue. It’s not about fixing anything or forcing positivity. It’s simply about giving your body a moment of ease. I’ve created a free, guided breath work video for anyone who feels it may help — patients, carers, or loved ones. You can access it here: 👉 https://barrydubois.com/breathworktyp There’s nothing to get right. Just follow along and breathe. —-- For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes guest Candice Forward, a mother of three, who shares her family’s experience with her youngest son River who was diagnosed with T-cell acute lymphoblastic leukaemia at the age of two and a half. Candice describes the early signs of River’s illness and the response that led to his diagnosis. Detailing the intensive nine-month treatment period, during which River spent most of his time as an inpatient, and the impact it had on their family’s daily routine. Exploring how Candice and her partner balanced caring for River and their two other children. The emotional and psychological challenges that come from caring for a child with blood cancer, including the importance of accessing professional support. Candice explains how engaging with a psychologist helped her process trauma and manage communication with her children. She also discusses the aftermath of treatment, including River’s bone marrow transplant with his older brother Reid as the donor. Candice speaks honestly about managing survivor’s guilt, the emotional toll of post-treatment adjustment, and how simple daily practices like gratitude and self-care have helped her and her children move forward. They reflect on the value of peer support, the importance of open communication, and the need for ongoing advocacy to address the broader support needs of families affected by blood cancer. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

Welcome to a new season of the Talking Blood Cancer podcast! In this episode, host Kate Arkadieff sits down with guest Alysia North who shares her personal journey after being diagnosed in 2022 with Hodgkin's lymphoma at age 28. Living in Central Queensland and navigating life as a new mother at the time, Alysia describes the sudden onset of symptoms and the psychological impact of moving from healthcare professional to patient. Looking through the challenges Alysia faced as she underwent chemotherapy, the loss of independence, and the emotional toll of hair loss and physical changes. She openly discusses the impact on her family. The reliance on her support network, especially her husband and mother, and the adjustments required when caring for her infant son, Theo, during treatment. A significant part of Alysia’s story is her experience with fertility preservation. She made the difficult decision to focus on recovery for the sake of her family. Despite a high likelihood of infertility following chemotherapy, nearly two years after finishing treatment, Alysia naturally conceived her second child, Charlie, whom she describes as a "miracle baby." This brought hope and joy during her survivorship and helped her heal emotionally from her cancer journey. Throughout the episode, Alysia provides practical advice for other young people and parents facing blood cancer, emphasising the resilience of children and the importance of accepting help. Exploring how recovery is a gradual process and the ongoing need for psychosocial support. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network Mentioned in this episode: To help in our pursuit of better government support, sign our petition on cutcancercost.org.au. Cut the cost of cancer – Leukaemia Foundation

In this wrap-up episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis reflect on the year’s conversations and the impact of sharing lived experiences with blood cancer. Together, they look back at stories shared by people at different stages of their journeys, from those newly diagnosed, to long-term survivors, young parents balancing treatment and family, and healthcare professionals offering their perspectives from within the system. Highlighting how each individual’s story is unique, yet many common threads connect people affected by blood cancer. They discuss the honesty with which guests have spoken, not only about the challenges of fear, uncertainty, and grief, but also about moments of connection, unexpected joy, and personal strength. Offering reassurance and appreciation, reinforcing the value of community and shared support for those navigating blood cancer. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Ian Brandon to discuss his experiences caring for his wife Cheryl, who battled non-Hodgkin's lymphoma. They delve into the journey that began in 2012 when Cheryl was first diagnosed, reflecting on the years of treatment and care they underwent together. Ian recounts Cheryl's initial reluctance to seek medical help and the rapid developments that followed her eventual collapse and hospitalisation. Outlining the difficult but crucial steps taken in seeking treatment, including the critical role played by the Wesley Hospital in Brisbane. Exploring the immense support provided by the Leukaemia Foundation, including their accommodations and resources, which helped Ian and Cheryl through ten years of challenging times. Ian highlights having confidence in the medical team and the significance of the support network provided by the Leukaemia Foundation to both patients and carers. They also touched on the emotional and logistical aspects at the end of Cheryl's journey, emphasising the critical support from various healthcare teams, including the palliative care unit and the ongoing significance of blood donations. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Andy Fithall, who shares his personal experience of being diagnosed with Chronic Lymphocytic Leukaemia (CLL) at the age of 40. Highlighting the challenges of receiving a blood cancer diagnosis during the COVID-19 pandemic and navigating the “watch and wait” approach, which can be an unfamiliar and sometimes isolating experience. Andy discusses how his diagnosis occurred unexpectedly when he was being screened for haemochromatosis. Describing the shock of hearing the diagnosis, and the anxiety that followed during the days leading up to his first specialist appointment. He reflects on the impact this news had on him, and the process of telling his diagnosis to his wife and two children in an age-appropriate way. They explore the psychosocial aspects of living with blood cancer, particularly in a “watch and wait” situation. Andy talks about managing anxiety, the periodic worries triggered by upcoming blood tests, and the challenge of balancing normal life with the uncertainty that comes from not knowing if or when treatment will be needed. They also touched on the feelings of loneliness and isolation that can come with a diagnosis where immediate treatment is not required. Andy notes that although he looks healthy from the outside, the emotional impact of living with blood cancer is real. Emphasising the value of being honest with loved ones about what he is experiencing and encourages others in similar situations to reach out for support. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Prue Meier and her son Chase to discuss their journey navigating blood cancer. Chase, who is now ten years old, was diagnosed with Acute Myeloid Leukemia (AML) when he was just four. Chase shared some light-hearted reflections on his memories of the special room where he received cookies during his treatments, and his life at school today. Which showed a glimpse into Chase’s resilience and serves as a reminder of the unique experiences of young cancer patients. Prue opens up about the early signs that led to Chase’s diagnosis and the things that followed. She discusses the challenging period of their lives, the initial symptoms, the anxieties as a parent, and the crucial role played by the healthcare team and the Leukemia Foundation. Prue also shares the touching story of being Chase’s bone marrow donor and all the emotions tied to that experience. They further delve into life post-treatment and the adjustments as Chase returned to a semblance of normalcy, emphasising the support network they had, including family, friends, and the community at the Leukemia Foundation. Prue highlights practical tips for families going through similar experiences, such as accepting help and capturing memories through photographs. For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network