Looking at Lyme

In this episode, we talk with Nicole Bell, CEO of Galaxy Diagnostics and author of the memoir What Lurks in the Woods . Nicole is an experienced executive in the medical device and diagnostics industry, and holds Master’s degrees in materials science and biomedical engineering. She has exceptional experience in commercializing innovative technologies, building research and development programs, and driving products through to FDA approval. Nicole’s best-selling and award-winning memoir, What Lurks in the Woods , vividly details her family’s experience with undiagnosed tick-borne infection. This firsthand knowledge of the devastating impact of misdiagnosed chronic illness fuels her passion to drive a new diagnostic standard of care for the industry. After losing her husband to tick-borne illness, Nicole set out to use her engineering skills and experience to ensure that no family would have to go through something similar. Shownotes Galaxy Diagnostics Center for Lyme Action: State of the research What Lurks in the Woods

In this episode, we talk with Dr. Richard Rusk, a public health leader specializing in health promotion, disease prevention, and the management of complex chronic conditions. Trained as a veterinarian and physician with advanced credentials in public health and preventive medicine, Dr. Rusk operates at the intersection of epidemiology and frontline implementation across Manitoba Canada. Previously serving as Provincial Chief Occupational Medical Officer and the Medical Officer of Health with Manitoba Health CDC Lead, Dr. Rusk now serves as Medical Director of Rusk Medical Solutions. Dr. Rusk’s recent peer reviewed publication on the incidence of clinician-diagnosed Lyme disease in Manitoba investigates the gap between reported and real cases of Lyme. DOI: 10.1089/vbz.2024.0088 www.lookingatlyme.ca www.canlyme.com

In this episode, we speak with Dr. Michael Howlett, a veterinarian based out of Cumberland County, Nova Scotia. When Dr. Mike returned to Nova Scotia to practice veterinary medicine, he did not expect to see so much Lyme disease; however, his location on the South Shore proved to be a hot spot for Lyme. Dr. Mike has become very passionate about increasing awareness and prevention of Lyme disease during his time as a veterinarian. We are very interested in what goes on for non-human animals and how this might affect the human experience.

In this episode, we speak with Blake Corbin. Blake grew up in the Ottawa Valley and became an avid hunter and outdoorsman. He’s been very involved with local fish and game clubs and other organizations that mostly focus on youth initiatives, wildlife and habitat restoration. Blake volunteers his time to educate fellow outdoors enthusiasts about avoiding ticks and how best to prevent getting bitten. CanLyme Flyer (PDF) Geneticks tick testing Educators' Resource Tick removal kits Bulk pricing for tick removal kits

Dr. Tim Cook is an Internal Medicine Specialist who has spent decades helping patients with complex illnesses. He worked abroad with the Canadian Armed Forces and he has been the physician for multiple officials at Rideau Hall. In today’s episode, we hear how medicine is evolving to handle Lyme Disease, and learn more about an upcoming conference for medical professionals all about tick-borne diseases. Resources Horowitz questionnaire (PDF) Geneticks tick testing Practitioner’s conference (tell your family practitioner!) CTD Conference poster (PDF) to share with your health practitioner

In this episode, we speak with Dr. Kendall Soucie and Marissa Rakus. Dr. Kendall Soucie is an Associate Professor in the Department of Psychology at the University of Windsor, in Ontario Canada. She studies women’s health, particularly the social and institutional impacts of living with chronic health conditions. Marissa Rakus is a PhD candidate in the Applied Social Psychology program at the University of Windsor. Her research examines gender-based violence and women's interactions with formal support systems. Together they are researching medical gaslighting. They’ve been gathering information from respondents and have compiled close to 2,000 responses from women who say medical personnel have not taken their problems seriously. They join us today to talk about this challenge and how it impacts chronic health conditions like Lyme disease. www.lookingatlyme.ca

In this podcast, we talk with Dr. Sarah Keating. As an anatomic pathologist for more than 35 years, Sarah worked on staff at a number of hospitals in Ontario as well as at Ontario Forensic Pathology Services. She is recently retired but is passionate about learning as much as possible about tick borne diseases in order to help improve the access to care for suffering patients. She maintains her affiliation with the University of Toronto as an Associate Professor Emeritus in the Department of Laboratory Medicine and Pathobiology. Sarah has been a member of the CanLyme board since 2022 and she is also an active member of ILADS – the International Lyme and Associated Diseases Society. Read more www.lookingatlyme.ca canlyme.com/sarah-keating/

In this podcast, we talk with Dr. Eleanor Stein. Dr. Stein is a medical doctor and psychiatrist. The course of her career in academic medicine took a sudden turn when she developed myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia and environmental sensitivities in 1989 during her psychiatry residency. She experienced the same lack of informed care that so many face and as a result made the decision to focus her practice on chronic complex diseases. Since then, she has devoted her career to learning about these conditions and has worked closely with thousands of patients integrating conventional and integrative approaches to help them improve their health and function. Dr. Stein retired from medical practice at the end of 2022 to devote her time to sharing what she has learned over the past 35 years. Through her website, she provides free resources and paid courses. www.lookingatlyme.ca www.eleanorsteinmd.ca

In this episode, we talk with Lilian Dart, a PhD student at the University of Toronto. Lilian is an environmental geographer who researches the complex relationship between humans and their environment, focusing on how this relationship shapes behaviour, participation, and environmental decision-making in Canada, with particular attention to issues of environmental justice and equity. With a strong academic foundation spanning both the sciences and social sciences, her previous work has explored community-based conservation, community health, and housing policy. www.lookingatlyme.ca

In this episode, we talk with Dr. Nicoletta Faraone, a chemical ecologist and natural product chemist Dr. Faraone is an associate professor in the chemistry department at Acadia University where she teaches biochemistry and natural product chemistry. Her research focuses on how ticks detect odours from hosts and how they respond to repellants. She designs and develops novel essential oil based tick repellant products using nanotechnology. Since 2019, Dr. Faraone has supervised more than 50 students, technicians, research students, postdocs, and has received more than two million dollars CAD to support her research. Further reading: Acadia researcher finds that lemongrass oil is a natural tick repellent Arming us in our battle with ticks: ‘They will be always out there’ Atlantick Nicoletta Faraone

Hello, and welcome to season six of Looking at Lyme! We’re thrilled to be kicking off this season talking with contributors of an important new research report from the National Academies of Sciences, Engineering and Medicine, which studied current gaps in research and treatments for Lyme Infection-Associated Chronic Illnesses. Dr. Kent Kester is board certified in both internal medicine and infectious diseases, is the chair of the publication committee, and is the vice chair of the National Academy of Medicine Forum on Microbial Threats. During his 24-year career in the U.S. Army, Kent led multiple research platforms at the biggest and most diverse lab with the Department of Defense, with a significant emphasis on emerging infectious diseases, and later led that institution as its commander. Nicole Malachowski is a retired air force fighter pilot, National Women's Hall of Famer, Keynote speaker, and Tick Borne Illness Patient Advocate. She lives and works in Colorado and she represents the patient perspective on the NASEM committee that produced this important new research. Their new publication is called “Charting a Path Toward New Treatments for Lyme Infection-Associated Chronic Illness”. ( https://doi.org/10.17226/28578 ) We spoke with these two about their experiences putting together this report, and what impact they hope it will have moving forward.

We’re excited to announce season six of the Looking at Lyme podcast! New conversations with scientists, advocates, experts, and others will bring you interesting and fresh perspectives from across Canada and around the world. The more we learn, the better equipped we’ll be to create positive change. Building Lyme literacy that places the patient first is what our podcast is about in so many ways. To better understand where we’re at in diagnosing, and treating Lyme, and other tick-borne diseases and exploring possible solutions. Wherever we go, we hope you’ll join us. We appreciate all of our listeners and everyone in the community working to find solutions with curiosity and open minds. Make sure to subscribe to Looking at Lyme wherever you listen to podcasts so you don’t miss an episode! And keep an eye out for our show notes for further reading and information. We’ll see you soon in season six!

We hope you enjoyed season 5 of Looking at Lyme. We're very grateful to Catherine Kinsella for leading the many interesting conversations with scientists, advocates, experts, and more. Thank you, Catherine. We're excited to announce that season 6 of Looking at Lyme will be coming in the new year. We would also like to welcome Kim Cairns, who will be hosting the new season. We're really looking forward to getting season 6 started.

Clinician-researcher Dr. Jack Lambert shares his experience working on emerging infectious diseases and his approach to treating Lyme disease. In this episode we speak with Dr. Jack Lambert, an infectious disease consultant at the Mater Misericordiae University Hospital in Dublin, Ireland, and professor at the University College Dublin School of Medicine. Originally from Scotland, Dr. Lambert completed his medical training in the US and has specialty certifications in adult and pediatric infectious diseases, general medicine, and sexual health. He’s founder of the Lyme Resource Centre and serves as an advisory board member to Invisible International . We spoke with Dr. Lambert about his experience working on emerging infections, his approach to treating Lyme disease patients with antibiotics, and what is needed to improve Lyme disease research. www.lymeresourcecentre.com www.lookingatlyme.ca www.canlyme.com www.invisible.international

In this episode, we speak with Nova Scotia Lyme disease advocate Donna Lugar. She currently runs the Nova Scotia Lyme Support Group, the Nova Scotia Lyme Advocacy Group, and is working to develop the Nova Scotia Lyme and Tick-Borne Diseases Association. She also writes a Lyme disease blog, Shining the Lyme Light . We spoke with Donna about her experience as an advocate, including her work educating the public and working to improve Lyme disease policy in Nova Scotia and the rest of Canada. Read more: Shining the Lyme Light Blog Petition YouTube videos from VOCAL conference

In this podcast, we speak with Dr. Nevena Zubcevik, a Harvard trained and board certified physical medicine and rehabilitation physician, and Chief Medical Officer of Invisible International. Dr. Zubcevik talks about some of the challenges that doctors and Lyme patients face within the medical system, including time constraints and the “syndromizing” of symptoms rather than addressing their cause. www.lookingatlyme.ca show notes Invisible International Medical courses Learning resources Article library

In this episode, we speak with Canadian naturopathic doctor, Dr. Marie Mathieson. Dr. Matheson is one of a growing number of Canadian clinicians who are helping Lyme patients find solutions and gaining valuable expertise in the process. She's co-founder of BioHeal Ottawa and creator and facilitator of the Lyme Bright Collective and Tick Bite Ready. She completed the ILADS Physicians Training Program with the late Dr. Charles Ray Jones. She also serves on the advisory board for the Forum of Integrative Medicine. Welcome to the podcast, Dr. Matheson. www.lookingatlyme.ca Read the full show notes Health education grants

In this podcast we speak with Sarah Quillen, executive director of the International Lyme and Associated Diseases Society, and ILADS sister organization, The International Lyme and Associated Disease Education Foundation. Sarah received her Masters in Public Affairs from University of North Carolina and is a Certified Fundraising Executive. With over 25 years of experience in the healthcare arena, including fundraising, public relations and program development, Sarah is building on the important work that ILADS has done over the years to support researchers, clinicians and their patients. Sarah was raised in upstate New York, and grew up with ticks in her surroundings from a young age. She learned more about Lyme disease when her father was bitten by ticks on several occasions and developed Lyme disease. This experience brought to the forefront the difficulties that people can have in getting the proper diagnosis and treatment for Lyme disease. Through her professional network she learned about an opening at ILADS and took on the position of executive director last year. In this role she has taken on a variety of responsibilities in order to ensure that organization runs smoothly. Read the full show notes ILADS ILADEF

In this podcast we speak with Mario Levesque, Associate Professor of Canadian Politics and Public Policy in the Department of Politics and International Relations at Mount Allison University. His teaching and research focus on Canadian politics and public policy, with interests in Atlantic Canadian politics and Lyme disease policy in Canada. He recently co-authored a paper with colleague Marilyn Cox called Small Wins for Those with Lyme Disease in Canada, Patients in an Embodied Health Movement. www.lookingatlyme.ca Mario talks about his entry into policy work, navigating policy between the private sector and government. This early work sparked his interest and motivated him to learn more about public policy. After receiving his PhD in public policy, he started working in the area of disability policy, work that overlaps with the work he’s now doing regarding Lyme disease policy. After his conversations with Vett Lloyd of Mount Allison University, Mario developed an interest in studying Lyme disease policy in Canada. Read the full show notes Mario Levesque, PhD, at Mount Allison University

In this episode of the Looking at Lyme podcast we welcome Dorothy and Rachel Leland, a dynamic mother and daughter duo who are changing the way we understand Lyme disease through their writing and their drive to convey important information to help Lyme patients and those around them. Rachel and Dorothy are co-authors of the book Finding Resilience: A Teen's Journey Through Lyme Disease . In the book, Rachel recounts her difficult journey through Lyme disease and co-infections. She is now a speech language pathology assistant. Dorothy is president of Lymedisease.org, an internationally renowned organization and platform for Lyme disease education, advocacy and research. She is also author of the online blog, Touched by Lyme. Full show notes at www.lookingatlyme.ca Lymedisease.org Finding Resilience: A Teen's Journey Through Lyme Disease